Elijah Enjoying Himself

We had Elijah's yearly cardiologist appointment on Friday. For some reason they scheduled us at the PCH office instead of at our usual office. What did we find out? Well he is 40# and 40 3/4 inches. He is on a normal growth curve but his heart is not where we expected. It is still enlarged...even in comparison to his growth. Dr didn't hear the type of murmur that is indicative of TOO much flow (which makes him happy because hearing this murmur = problems). He does still have a murmur. Huge. Whopping. At least in my eyes (ears?). When you hug him you can hear it. Anyways. I actually have been looking forward to this appointment because lately (last 2 or 3 months) I have noticed him to be very tired. He falls asleep (he won't take a nap despite him needing one) and he always has bags under his eyes. What are we doing about it? Well, obviously open-heart surgery is a HUGE thing so instead we are trying some drug therapy. He is now on Lisinopril...which FREAKS ME OUT! I hate cardiac drugs (well I guess I'm ok with dopamine and dobutamine but all the crazy stuff like digoxin and such..ok..now I'm rambling like a nurse...) and I just get nervous with them. He has to have this particular drug in a solution and not all pharmacies do it so bc PCH does I opted to just get it there rather than drive home and find out nobody does it. Especially since after this they will mail it to me. Score. 

Here Elijah is in the spinning chair waiting for his meds.

Bonus? They were giving out FREE ice cream in the cafeteria (I'm guessing because of Nurses Week). Bonus for us :) Gotta love the ice cream sandwiches!

So now we hurry up and wait another 6 months to see what happens. In the meantime I get to deliberate his condition every time he gets a little tired or looks ill and worry "is it his heart?" I guess I just need to realize that ultimately God is in control and He will get Elijah through whatever he needs.